Our Mission
It is the mission of the Fabry Support & Information Group (FSIG) to raise awareness of Fabry disease and its symptoms, to advocate for community needs and to lead the fight for the most effective treatment possible and eventually a cure. FSIG provides a link for the Fabry community to information, each other, the medical community, researchers, the pharmaceutical industry and regulatory authorities. FSIG strives to support affected families and individuals lead fuller lives.
Years
27
Helping Families
Over
270
Patient Stories
Over
1.1m
Visitors
Over
230
Patient Meetings
Our Story
FSIG was started in 1996 as a “kitchen table” support group
formed by two Fabry patients and a supportive family member with the hope that their particular understanding of this disease, combined with experience at gathering information and working with doctors could benefit others. FSIG is a continually growing and expanding organization constantly looking for new opportunities to assist in improving patient’s lives.
The LSDAC is a new advocacy coalition of multiple patient advocacy organizations dedicated to advancing public policy priorities that benefit and improve the quality of life for patients living with lysosomal storage disorders.
